Entitlement? Hell Yes!

Everyone wants the best for their children, and if your child is going to require a lifetime of care you most definitely want the very best possible.

Just because an individual has special needs doesn’t mean that they deserve any less when it comes to dignity, respect, and a comfortable, safe living environment.

When we were looking for placement for Zachary, the “powers that be” thought we were asking too much.  When we said no to homes on busy streets, with no fences, with four people in a room, and only one staff on at night you would have thought we were asking for a long-term stay at Club Med.

There are people who think the things I listed are “luxuries” and that we should not expect tax payer dollars to provide these things to my son and others.  They feel Zach and individuals like him should not be “Entitled” to anything beyond basic care.

How do we express the need for change?  What will it take for lawmakers and agencies to see the urgency for transportation, community activities,  more quality housing with trained staff where consumers are safe and lead a fulfilling life?

There is such a shortage of spots, especially safe and appropriate spots that it has become like the Hunger Games….who can get the best spot first?  May the odds be ever in your favor!

I implore those of you with adolescents that may be looking for alternative placements in the future to start writing politicians, and mental health agencies now.  We need to let the folks making these decisions know that we are not OK with substandard care, or worse yet no care and no help. We need to speak up on behalf of our loved ones about the importance of dignity, respect and quality of life.

#climbingoffofmysoapboxnowquote-Angela-Merkel-when-it-comes-to-human-dignity-we-148642

 

Twenty One

Twenty one:

The title of Adele’s second album in 2011

The number of gun salutes honoring a veteran, royalty or leader of a country

The age at which someone can legally purchase and drink alcohol in the U.S.

The key value and highest-winning point total of the popular casino game Blackjack

The atomic number of scandium

The number of years that my boy has been on this planet

Happy Birthday Zachary!

At 18 you were considered an adult but 21 makes real.  You are officially a man.

Born 3 minutes after arriving at the hospital and while your father parked the car, you entered the world at lightening speed and have been keeping us on our toes ever since.

Your unadulterated joy, innocence and zest for life have been such a blessing to us.  You remind us every day of how we should live life to the fullest and appreciate all of the gifts we have been given.

Today there will be no dark clouds, no sadness, no wallowing in the what if’s or why’s. It will be a day about birthdays and all the things that you enjoy; Friends, family, food and fun!